Simi was born in the summer of 2015, he came to the family as the second son. He seemed to be a healthy baby, but at the age of a few months, it was already clear that his motor development was different from usual. He was tired, did not like to move, and it was increasingly difficult for him to walk. By the age of three, his growth had also slowed down, and his bones and joints were gradually deformed. For a long time, they did not get an answer to what was happening to him. After several different diagnoses, at the age of almost five, a genetic test confirmed that Simi lives with pseudoachondroplasia.

It is a rare, lifelong bone and cartilage formation disorder. Bones do not develop properly and are constantly deformed, and joints are destroyed very early. For Simi, everyday life was increasingly defined by pain and limited mobility.